Personal Safety Nets®

by Judy Pigott
and Dr. John Gibson

Related Links

cambiopress.mycart.net

For other books by John Gibson
"Dynamics of Aging Families"
"Health Care Issues of Aging Families"

LifeStrategiesByDesign.com

http://www.LifeStrategiesByDesign.com

CareAtHomeSeattle.com

With a little help: licensed senior care agency with attentive, warm-hearted caregivers serving seniors in greater Seattle, Bellevue, Kirkland areas

ResiliencyCenter.com

Information about Al Siebert's resiliency research and resources

Resources:

alsa.org

The ALS (Amyotrophic Lateral Sclerosis) Association, 27001 Agoura Rd, Suite 150, Calabasas Hills, CA 91301; patient services, 800-782-4747; office, 818-880-9007

alz.org

The association provides information on research, patient and community services, public education, and advocacy related to ALS. Alzheimer’s Association, 225 N Michigan Ave, Floor 17, Chicago, IL 60601; 800-272-3900

aarp.org

American Association of Retired Persons (AARP), 601 E StNW, Washington, DC 20049; 800-424-3410, 888-687-2277

abanet.org/aging

American Bar Association’s Commission on Law and Aging, American Bar Association Service Center, 321 N Clark St, Chicago, IL 60610; 312-988-5522, 800-285-2221. The center provides information on research, education, and advocacy, including information about serving as a health-care representative.

cancer.org

American Cancer Society, 1599 Clifton Rd NE, Atlanta, GA 30329; 800-ACS-2345 (800-227-2345). This nationwide community-based voluntary health organization is dedicated to eliminating cancer through research, education, advocacy, and service.

diabetes.org

American Diabetes Association, National Call Center, 1701 N Beauregard St, Alexandria, VA 22311; 800-DIABETES (800-342-2383). The association supports diabetes research, information, and advocacy.

americanheart.org

American Heart Association, 7272 Greenville Ave, Dallas, TX 75231; 800-AHA-USA-1 (800-242-8721). This association provides information and training regarding heart health (in conjunction with the American Stroke Association).

americanhospice.org

American Hospice Foundation, 2120 L Street NW, Suite 200, Washington, DC 20037; 202-223-0204. The foundation improves access to quality hospice carethrough public education, professional training, and advocacy on behalf of consumers.

lungusa.org

American Lung Association, 61 Broadway, Sixth Floor, New York, NY 10006; 212-315-8700, 800-LUNG-USA (800-586-4872), 800-548-8252 (to speak directly to a lung health professional). The association works to prevent lung disease and promote lung health.

apdaparkinson.org

American Parkinson Disease Association, Inc., National Office: 135 Parkinson Ave, Staten Island, NY 10305; 718-981-8001, 800-223-2732. West Coast Office: 10850 Wilshire Blvd, Suite 730, Los Angeles, CA 90024; 800-908-2732, 310-474-5391. The association works to "ease the burden and find a cure for Parkinson’s disease" through research, patient support, education, and raising public awareness.

strokeassociation.org

American Stroke Association, 7272 Greenville Ave, Dallas, TX 75231; 888-4-STROKE (888-478-7653). (in conjunction with the American Heart Association). The Assisted Living Federation of America, 703-691-8100.

alfa.org

This organization is geared to senior adults, families, and information seekers looking to find assisted living for themselves or family members. ALFA is the largest national association exclusively dedicated to professionally operated assisted living communities for seniors. It provides resources for seniors and their families, as well as for professionals in the field.

cancerlifeline.org

Cancer Lifeline, 6522 Fremont Ave N, Seattle, WA 98103; 206-297-2100, 800-255-5505, 206-297-2500; The goal of this organization is to optimize the quality of life for all people living with cancer. Care At Home Eldercare Services, 4742 42nd Ave SW, Seattle, WA 98116; 206-962-1940; http://www.CareAtHomeSeattle.com.

caresource.com

This Seattle-area resource is for in-home care providers and solutions. Caresource Healthcare Communications; Two attorneys started this fee-based resource for print, Web, and multimedia to provide high quality, up-to-date, competitively priced information. They published Kenny and Oettinger’s The Family Care Book (see Bibliography), an excellent resource.

caringbridge.org

CaringBridge, 3440 Federal Dr, Suite 100, Eagan, MN 55122; 651-452-7940, 651-789-2300; This is an online resource for connecting with those to whom an individual gives access. It provides private, secure space for health updates and photos along with responses from those who check in.

caps4caregivers.org

Children of Aging Parents, PO Box 167, Richboro, PA 18954; 215-945-6900, 800-227-7294; This national organization assists the nation’s 54 million caregivers of elderly and chronically ill persons with reliable information, referrals, and support, and builds awareness of the valuable services that caregivers provide.

eldercare.gov

The Eldercare Locator, 800-677-1116 (Monday through Friday, 9 a.m. to 8 p.m. EST); This is a nationwide toll-free service to help seniors and their caregivers find local services. It is a public service of the U.S. Administration on Aging, designed to connect older Americans and their caregivers with sources of information on seniors. ElderCare Online, 50 Amuxen Court, Islip, NY 11751;

ec-online.net

This is an online resource and support network for caregivers. Family Caregiver Alliance, 180 Montgomery St, #1100, San Francisco, CA 94104; 415-434-3388, 800-445-8106;

caregiver.org

The alliance provides information for family members caring for someone with head injury, Alzheimer’s, or related dementia. It supports and sustains families and friends providing long-term care.

50plus.org

The 50-Plus Lifelong Fitness, 2483 E Bayshore Rd, #202, Palo Alto, CA 94303; 650-843-1750; This organization promotes a more active lifestyle for those who are fifty or older.

fullcirclecare.org

This Web site provides updated resources, information, and individual assistance to family caregivers. It is an easy-touse and comprehensive Web site, helping family caregivers complete the cycle of care.

4elders.org

Healthy Aging Partnership, 888-4ELDERS (888-435-3377); The Web site is a Puget Sound resource for "living life as a healthy adult." Interfaith CarePartners, 701 N Post Oak Rd, #330, Houston, TX 77024; 713-682-5995;

interfaithcarepartners.org

The mission of this nonprofit organization is to "work with partner organizations to assist their development of service programs that manifest each congregation’s commitment to member care."

leukemialymphoma.org

Leukemia & Lymphoma Society, 1311 Mamaroneck Ave, White Plains, NY 10605; 914-949-5213; This organization funds blood cancer research, education, and patient services.

livestrong.org

Livestrong: The Survivorship Notebook, Lance Armstrong Foundation, Austin, TX;

medicalert.org

Medic Alert Foundation International; 2323 Colorado Ave, Turlock, CA 95382; 888-633-4298;

mdausa.org

This nonprofit group maintains a national database for individuals with serious health issues. Muscular Dystrophy Association, 3300 E Sunrise Dr, Tucson, AZ 85718; 800-572-1717; The goal of this association is to create "a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than 1 million Americans."

ncoa.org

National Adult Day Services Association, c/o the National Council on Aging, Inc., 409 Third St SW, Washington, DC 20024; 202-479-1200, 202-479-6674 (TDD); The association is dedicated to improving the health of older persons and increasing their continuing contributions to communities, society, and future generations.

navh.org

National Association for Visually Handicapped, 22 W 21st St, Sixth Floor, New York, NY 10010; 212-889-3141; This worldwide organization serves the hard-of-seeing.

caremanager.org

National Association of Professional Geriatric Care Managers, 1604 N Country Club Rd, Tucson, AZ 85716; 520-881-8008; The association gives both peer support and help for those interested in looking for or evaluating a geriatric care manager.

nfcacares.org

National Family Caregivers Association, 10400 Connecticut Ave, #500, Kensington, MD 26095; 800-896-3650; This group supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one.

nationalmssociety.org

National Multiple Sclerosis Society, 733 Third Ave, New York, NY 10017; 800-FIGHT-MS (800-344-4867); NMSS is dedicated to ending the devastating effects of multiple sclerosis.

nolo.com

NOLO Law for All Plain English Law Centers. This organization is known as "the nation’s leading provider of do-it-yourself legal and business solutions for those of us without law degrees or MBAs." They provide information, not advice, on many topics, including healthcare directives and powers of attorney. NOLO is an affiliate of the Kolimbo Network.

spinalcord.uab.edu

Spinal Cord Injury Information Network, UAB Model Spinal Cord Injury System, Office of Research Services, 619 19th St S, SRC 529, Birmingham, AL 35249; This organization focuses on collaborative clinical research to solve the medical management and acute rehabilitation problems of individuals with SCI.

supportteam.org

The Support Team Network, 188 Community Care Building, 980 S 20th St, Birmingham, AL 35294; 877-614-9129; This organization produces an informative Web site about all aspects of care-team creation and maintenance. It also provides a training and resource center for the development of volunteer support teams for persons with health concerns or other special needs. It is designed for congregations or organizations.